We are 2 million with RP in the world — where are we?
You are not alone. By joining, you help your city and region become visible — so people with Retinitis Pigmentosa and their families can finally find each other.
1 in every 4,000 people has RP. 1in4000 is our community, help and support — together we become stronger.
1
already on board
1
and counting
Our collective goal
1 / 10,000 members
0% of the way there. Every single person makes our community more visible.
Where are we in the world?
A glimpse of our growing community. Open the full interactive map to explore.
Show the world how you see
No one knows how you see with RP — until now. Upload your own photo, shape it to your exact vision, then download or share it on Instagram and Facebook so the people you love finally understand.
Note: "missing" zones aren't black or white — your brain simply doesn't register them. "Blind spot" shows a colourless void that fades to nothing (closest to reality); Dark / White are alternatives. It's only an approximation so sighted people can grasp it.
Start from a pattern
Missing zones look like
A community full of hope
RP changes how we see — not who we are. Here, people living with RP and the people who love them stand together. If you've lost hope, we're holding some for you.
Help us become visible
Every person who joins turns an invisible community into a map full of light. It only takes a minute, and you choose exactly what to share.